New name: Norwegian Centre for Rare Diseases

The Norwegian Centre for Rare Diseases brings together and continues the national work in this field. The centre has now a strengthened mandate to build competence, share knowledge, and support equitable access to diagnosis, treatment, and care for people in Norway.

Transition process

The transition will continue throughout 2025 and beyond. All ongoing activities are maintained while the centre aligns with the updated mandate from the Ministry of Health and Care Services.

Focus areas

The centre’s main goals are to:

• Increase access to knowledge and digital resources

• Expand the focus from single diagnoses to broader disease groups

• Strengthen collaboration with healthcare providers through networks and shared expertise

• Support healthcare professionals, patients, and caregivers with coordinated and reliable information

Stay informed

Some materials may still show the old name during this transition. We will keep stakeholders updated as changes are implemented.