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Medical research and quality registry -Mental illness and addictive disorders – Oslo university hospital
Registry of Mental Illness and Addictive disorders at Oslo University Hospital
We are going to gather information about mental health in the Registry of Mental Illness and Addictive disorders at Oslo University Hospital (PHA registry). The information from the registry will be used in research and quality improvement.
Ultimately, our goal is that the registry's content will contribute to better health services.
Please see the information below how you can help building better services.
Illustration showing hands of health care personnell holding a jig saw puzzle. The picture is illustrating the registry content as pieces of information , where the total pieces forms a picture of health care services which the clinic offers. Picture from Shutterstock
Health registry
The Registry of Mental Illness and Addictive disorders (PHA registry) is a health registry where information on mental health is systematically stored. The registry is both a quality registry and a research registry.
The information in the registrywill be used in research on mental illness and addictive disorders, and for working to improve quality of health services. In both cases, our aim is that the registry contributes to better health services.
Registry for mental illness and addictive disorders
At Oslo University Hospitalat Division of Mental Health and Addictionpatients with mental illnesses and addictive disorders are assessed, diagnosed and treated. We will gather information on all the treatment and patients that get their health services here.
Please don't send sensitive information to the registry via e-mail. eDialog (see below) is an encrypted solutin for secure digital communisation with the hospital
Mailing address
Oslo University Hospital
Division of Mental Health and Addiction
Registry of Mental Illness and Addictive disorders (PHA-registry)
Mailbox 4956, Nydalen
0424 Oslo
eDialog – secure transfer of sensitive documents and attachments
Please note that general enquiries, such as questions about waiting times or referral procedures, are not answered through eDialog.
For your information to be a part of the research registry, we need your consent.
You may withdraw your consent at any time. If you decide to withdraw your consent, there will be no consequences for you or your treatment at the hospital. You don't have to provide your reason for withdrawing your consent.
Please, contact the registry at our postal address to withdraw your consent. Another option is if you have a personal electronic identification for digital signing, such as BankID. Then you may also use the encrypted message solution, eDialog for this. See how below.
eDialog – secure transfer of sensitive documents and attachments
Please note that general enquiries, such as questions about waiting times or referral procedures, are not answered through eDialog.
If you withdraw your consent, we will delete all data related to you from both the PHA registry and ongoing research studies where your data is included. In addition, any biological material (for example a blood sample) from you donated to NORSMI biobank will be destroyed permanently.
Anonymous data used in previous research projects cannot be deleted, but the information will not be used in any new studies.
If you withdraw your consent, you will receive a confirmation note when all your data are erased.
Below, and on the NORSMI biobank website (in Norwegian), you can find and overview of projects that have received data from the PHA registry. Patients from Oslo University Hospital that have given their consent, may be included in some of these studies.
The overview contains a short description of each study, and if applicable, a link to the study’s website.
Please see the project website or contact the project leader of each project to obtain more information about any specific research project.
Psychiatric disorders, personality, symptoms, distress and quality of life in adults with congenital heart disease (ACHD)
Responsible institution/hospital: Oslo University Hospital
Hospital unit involved in the study: Department of Specialized Psychiatry, Section of Psychosomatic Medicine
Project status: Ongoing
Type of research project: Single centre (one hospital unit involved)
Contact information/name of the project leader: Birgitte Boye
Telephone number: 932 49 952 / 23 07 41 62
Short description of the study: This is a student thesis (medical student) about mental disorders, personality, symptoms, stress and quality of life in adults with congenital heart disease.
If you don’t want your data to be a part of this project, please contactBirgitte Boye.
Psychiatric and cognitive factors related to course after transplantation- a real-world descriptive study
Responsible institution/hospital: Oslo University Hospital
Hospital unit involved in the study: Department of Specialized Psychiatry, Section of Psychosomatic Medicine
Project status: Ongoing
Type of research project: Single centre (one hospital unit involved)
Contact information/name of the project leader: Birgitte Boye
Telephone number: 932 49 952 /23 07 41 62
Short description of the study: We study patients undergoing psychosomatic examination as part of hospital assessment before transplantation. All participants must have signed a broad consent before November 2024. Our goal is to analyse the relationship between psychosomatic factors measured before transplantation and the course after transplantation. Pre-approval from REK 729657.
If you don’t want your data to be a part of this project, please contact Birgitte Boye.
GenSUD: Unlocking Genetic and Trajectory Insights into Substance Use Disorders through Extensive Biobank Sampling
Responsible institution/hospital: Oslo University Hospital
Hospital unit involved in the study: Department of Emergency Addiction Services
Project status: Ongoing
Type of research project: Single centre (one hospital unit involved)
Short description of the study: We aim to understand why some people develop substance use disorders and why these often occur together with other mental or physical illnesses – focusing on patterns in disease trajectories and shared genetic risk. Pre-approval from REK 752600.
If you don’t want your data to be a part of this project, please contact Astrid Bjørnebekk.
Using Artificial Intelligence methods for better understanding of the causes and treatment of mental disorders (AI-mental)
Responsible institution/hospital: Oslo University Hospital
Hospital unit involved in the study: Department of Research and Innovation, Section for Precision Psychiatry
Project status: Ongoing
Type of project: Multicenter study (More than one study center, hospital clinics or study sites)
Contact information/name of the project leader: Ole Andreassen
Short description of the study: The aim of the project is collecting information about patients from different sources. We will compile the information using secure and closed AI algortihms. The compilation can give clinicians a better basis for choosing treatment. No new data is required from thos who consent to this project.
If you don’t want your data to be a part of this project, please contact the project at the e-mail address norment@medisin.uio.no.
BriefInterventionCrisisProtocol (BICP)
Responsible institution/hospital: Oslo University Hospital
Hospital unit involved in the study: Department of Acute Psychiatry
Project status: Ended
Recruitment period: 2019 - 2023
Type of research project: Quality improvement study, Single centre (one hospital unit involved)
Contact information/name of the project leader:Ingrid Dieset
Telephone number: 22 11 84 35
Short description of the study: We performed a retrospective review of medical records from patients who received Brief Intervention Crisis Protocol at the Department of Acute Psychiatry, Oslo University Hospital. We recorded data regarding suicidality, self-harm and length of stay.
For more information about this project, please contact Ingrid Dieset.
Akusleep
Responsible institution/hospital: Oslo University Hospital
Hospital unit involved in the study: Department of Acute Psychiatry
Project status: Ended
Recruitment period: 2020 - 2021
Type of research project: Pseudo-randomized, natural cluster study, Single centre (one hospital unit involved)
Contact information/name of the project leader:Ingrid Dieset
Telephone number: 22 11 84 35
Short description of the study: The main of this study was to develop and implement at sustainable and effective treatment method for sleep disturbances tailor-made for psychotic patients with a high load of psychotic and affective symptoms in an acute ward setting with limited access to clinical psyshologists and/or psychiatrists.
