Forskning innenfor barnepalliasjon

OsloMet: Forskningsnettverket CHIP

Les om Forskningsnettverket CHIP, Children in Palliative Care:

Forskningsnettverket CHIP er et nasjonalt forskningsnettverk som også har internasjonale samarbeidspartnere. Nettverket har medlemmer som jobber med utdanning og forskning, klinikere som jobber i barnepalliative team og en solid gruppe brukermedvirkere.

"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition - PubMed

It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition - a qualitative study - PubMed

Focusing on life rather than illness: the lived experience of children with life-threatening and life-limiting conditions-a qualitative study - PubMed

Holmen H, Winger A, Steindal SA, Castor C, Kvarme LG, Riiser K, Mariussen KL, Lee A. Patient-reported outcome measures in pediatric palliative care-a protocol for a scoping review. Syst Rev. 2021 Aug 28;10(1):237. doi: 10.1186/s13643-021-01791-6. PMID: 34454605; PMCID: PMC8403431

Riiser K, Holmen H, Winger A, Steindal SA, Castor C, Kvarme LG, Lee A, Lorentsen VB, Misvaer N, Früh EA. Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept. BMC Palliat Care. 2022 Oct 22;21(1):187. doi: 10.1186/s12904-022-01077-1. PMID: 36273144; PMCID: PMC9587603.

Winger A, Früh EA, Holmen H, Kvarme LG, Lee A, Lorentsen VB, Misvær N, Riiser K, Steindal SA. Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care. BMC Palliat Care. 2022 Apr 11;21(1):50. doi: 10.1186/s12904-022-00933-4. PMID: 35410275; PMCID: PMC9004044.

Home-Based Pediatric Palliative Care and Electronic Health: Systematic Mixed Methods Review - PubMed

Holmen H, Riiser K, Winger A. Home-Based Pediatric Palliative Care and Electronic Health: Systematic Mixed Methods Review. J Med Internet Res. 2020 Feb 28;22(2):e16248. doi: 10.2196/16248. PMID: 32130127; PMCID: PMC7070344.

Følelser og profesjonalitet – En intervjustudie om fysioterapeuters erfaringer med barnepalliasjon i kommunehelsetjenesten.